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Bringing awareness to Hypoplastic Left Heart Syndrome (HLHS) & The Life of a CHD kid! Transplant list day 706 & Inpatient Waiting day 123... Henry's been hanging steady the last week or 2. Nothing major has changed, still just hanging out waiting for a heart. It's crazy that it was 2-years ago today that Henry and momma made their way back from CHOP in Philadelphia to NCH. This was in preparation for his surgical Fontan takedown. Henry had a special guest today at the hospital! Zeus from the Har
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