💙 The Medical Team Behind Duchenne Care 💙 When you live with Duchenne Muscular Dystrophy, it takes a whole medical team to keep one body moving, one spirit strong, and one family supported. It’s not just one doctor, it’s a network of specialists who each play a vital role: 🧠 Neurologist – leads the team, managing muscle and nerve health. ❤️ Cardiologist – monitors and protects the heart, which is also a muscle affected by Duchenne. 💨 Respiratory Specialist – helps support breathing as muscle
💙 The Medical Team Behind Duchenne Care 💙 When you live wit…
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Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy
Feb 25, 2020
sarepta.com
208 reactions · 558 shares | The family of a boy with life-limiting Duchenne muscular dystrophy have told ITV news they are devastated after being refused a breakthrough drug because it is not cost-effective. 10-year-old Archie Hill is one of 50 boys affected by the regulator's decision today. | ITV London | Facebook
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208 reactions · 558 shares | The family of a boy with life-limiting D…
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FacebookITV London
What is Duchenne? (for ages 4-7)
What is Duchenne? (for ages 4-7)
May 21, 2020
parentprojectmd.org
Parents who have children with Duchenne muscular dystrophy have welcomed the decision to allow the use of a new drug on the NHS. It's been shown to slow down the progression of the life-limiting disease. | BBC Hampshire & Isle of Wight
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Parents who have children with Duchenne muscular dystrophy ha…
12K viewsApr 16, 2016
FacebookBBC Hampshire & Isle of Wight
Duchenne muscular dystrophy (DMD) is a devastating genetic condition that results in progressive muscle weakness, spinal deformities, heart failure and early mortality. While genetic therapies are being explored, current treatments only alleviate symptoms. However, MCW’s Dr. Brian Lin and his lab are researching a promising approach that examines a calcium channel which becomes hyperactive in DMD and how inhibiting that channel could counteract the leading cause of death in DMD patients. Learn m
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Duchenne muscular dystrophy (DMD) is a devastating genetic co…
787 views9 months ago
FacebookMedical College of Wisconsin
The DMD Registry - Action Duchenne
The DMD Registry - Action Duchenne
Apr 19, 2019
actionduchenne.org
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Bone infusions are another feature of the Duchenne community. Whe…
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Today, the Food and Drug Administration approved the first …
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